"RECOVER’s mid-year milestones: A look at 2025 progress"
recovercovid.org/news/recovers…
Related video, "How often did RECOVER participants show symptoms of ME/CFS after their COVID infection?"
youtube.com/watch?v=zl02qki-SE…
#LongCovid #PwLC #MEcfs #PwME #NIH #Research #CovidIsNotOver
RECOVER: Researching COVID to Enhance Recovery
The long-term effects of COVID are real. Join the NIH in the search for answers.RECOVER: Researching COVID to Enhance Recovery
ahimsa
in reply to ahimsa • • •"… among people who enrolled in RECOVER within one month of getting COVID, just over 2.5 of every 100 people developed ME/CFS each year.
In comparison, among a matched group of people who were enrolled in RECOVER, but who were never infected with COVID, less than one out of every 100 people got ME/CFS.
This means that people enrolled in RECOVER who were infected with COVID were four times more likely to develop ME/CFS compared to those who did not get sick with COVID."
FIAR Light
in reply to ahimsa • • •Lyndsay Barwell
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in reply to Lyndsay Barwell • • •@treehugger I agree with this. However, other disease can cause severe fatigue, etc. They are not all lumped together.
The fatigue is horrible (been there, done that). My guess is that Long COVID is from sequestered virus.
Lyndsay Barwell
in reply to FIAR Light • • •FIAR Light
in reply to Lyndsay Barwell • • •Lyndsay Barwell
in reply to FIAR Light • • •ahimsa
in reply to FIAR Light • • •@LightFIAR
The current diagnostic criteria (CDC) does require PEM:
cdc.gov/me-cfs/pdfs/could-you-…
It's possible there are atypical cases (or subgroups of ME/CFS ? ) without PEM. I have no idea. But that's not the current definition of ME/CFS.
But no matter what diagnosis someone has, anyone with a disabling chronic illness deserves treatment, support, and kindness!
Lyndsay Barwell
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in reply to Lyndsay Barwell • • •Lyndsay Barwell
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in reply to Lyndsay Barwell • • •Lyndsay Barwell
in reply to FIAR Light • • •Lyndsay Barwell
in reply to FIAR Light • • •Lyndsay Barwell
in reply to FIAR Light • • •Lyndsay Barwell
in reply to FIAR Light • • •Lyndsay Barwell
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in reply to Lyndsay Barwell • • •biologyinsights.com/nicotine-a…
Nicotine and COVID: What the Research Says So Far - Biology Insights
BiologyInsights Team (Biology Insights)Lyndsay Barwell
in reply to FIAR Light • • •Some people don't get addicted to patches at all. I can't tell if I'm addicted to them like I am to caffeine or if...
FIAR Light
in reply to Lyndsay Barwell • • •Lyndsay Barwell
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in reply to Lyndsay Barwell • • •@treehugger That's pretty much all we can do. I managed Hep C for decades with supps/herbs etc and could follow liver enzymes, viral load, histology. (Got genocidally-priced drugs that cured it some years ago.)
With LC? All we have is clinical symptoms and if you see that pattern of benefit, etc., I think you are using it wisely.
You can see my list--and yeah, sorry I think much is unavailable in the UK. ugh. fiar.us
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FIARLyndsay Barwell
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in reply to Lyndsay Barwell • • •Lyndsay Barwell
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in reply to FIAR Light • • •I have had low iron and will soon find out if six months of supplements have made a difference.
FIAR Light
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in reply to FIAR Light • • •ahimsa
in reply to FIAR Light • • •@LightFIAR
My understanding is that if a patient meets the ME/CFS diagnostic criteria then they have ME/CFS. The cause is not specified in diagnostic criteria.
Most cases of ME/CFS, but not all, are triggered by a viral infection. SARS‑CoV‑2 is just one possible virus. Flu (H1N1) and other viruses have also been found to trigger ME/CFS.
Blog post from Bateman Horne Center on this topic:
batemanhornecenter.org/covid-1…
COVID-19 Triggers ME/CFS - Bateman Horne Center
Suzanne D. Vernon, PhD (Bateman Horne Center)